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Showing posts with label family. Show all posts
Showing posts with label family. Show all posts

Wednesday, September 26, 2012

National Previvor Day-My Story

September 26 is National Previvor Day....it happens to fall on the week that span September, national Ovarian Cancer Awareness Month, and October, national Breast Cancer Awareness Month.



Both of these cancers have touched my family over the last few years....and PRAISE GOD for His healing and care for my mom, my aunt and my grandmother, as they are all beating it. One member of my family was not so fortunate, and died from metastasized breast cancer when I was 16. My dear Aunt Noela was not even 40 years old. But that was 16 years ago now, and cancer research and treatments have come leaps and bounds in the last 16 years.

One of those advances is with genetic research in female cancers. Physicians long theorized that breast cancers might be genetically linked, but they weren't sure how. {SIDE NOTE: Know your family history! On both sides of your family! It's important!!} But now, they have pinpointed genes, that when a mutation occurs, increased a woman's chances of developing ovarian and/or breast cancers. They are called the BRACA 1 and 2 genes.

Part of my mom's diagnosis a year ago for breast cancer included genetic testing, particularly when her surgeon found out that my mom's sister died from breast cancer and another sister was in the middle of battling ovarian/Fallopian tube cancer. So along with the news last September that she found out she had breast cancer, mom was also told that she was "BRACA positive", meaning that she has that gene mutation.

We were devastated, of course. Especially since the family's energy had been focused the last 18 months or so on my aunt battling ovarian cancer. But my mom is a SUPER positive and energetic person (if you know her, you are laughing right now) and that certainly helped buoy everyone. But after the surgeries, there's still that BRACA gene mutation to deal with.

With mom's positive BRACA, that sent all the women in the family off to be tested. We can't be sure, but the doctor's think that my aunt who passed away 16 years ago was probably positive, particularly since she was so young with a cancer diagnosis. My aunt who just battled ovarian cancer is positive. My mom's mother is positive. Thankfully, their other sister, the youngest of the sisters, is negative.

I'm the oldest of 4; two girls and two boys; my sister is the youngest, with the brothers in between. We ALL had to be tested, even the boys. {While men DO develop breast cancer, even with a positive BRACA mutation, the risk apparently isn't that much higher. A positive BRACA male's risk is in passing that to his children.} Turns out, the youngest, Jacob and Abby, are negative {so they fall into the "normal" risk categories for breast/ovarian cancers}. The other brother, Noel, and I, are both positive.

{So are you keeping count here? It's confusing. BRACA positive family members: my mom, her mom, her sister, my brother, and myself. I think my mom's cousin and my grandmother's sister were tested too, but I don't know their outcomes}

So getting back to the Previvor Day. "Previvor" is a new-ish term, meaning someone who has the knowledge {eg-BRACA results} to "outwit" cancer, so as to not have to be a survivor. Lord willing, this means that with proper screening,  testing, and other preventative measures, I will not have to one day tell my family the dreaded words of "I have cancer". Knowledge is power, as the saying goes, and I now have extra knowledge to deal with my risk of cancer.

I was really upset about my BRACA positive diagnosis. And all kinds of unexpected feelings and thoughts went through me. {"I'm a genetic freak!"} Definitely, fear is the over-arching feeling. Trusting the Lord in this is hard. {"Why would He create me like this?"} Feeling alone and isolated. Doubts about having children are lurking. {"Do I even want to knowingly pass this gene mutation on to kids?"}My typical reaction to conflict or bad/hard situations is an ostrich-response: stick my head in the sand, and it will go away. Pretend that it's not there. Avoidance. {It took me 9 months after mom's diagnosis to eve go get my genetic testing.}

 So, you may be wondering what to do with this knowledge of a positive BRACA mutation. Well, for now, I'll be having mammograms, breast MRIs, pelvic ultrasounds, and blood tests....every six months. They will monitor everything (breasts and ovaries) very closely to track changes. Honestly, it's going to be exhausting. But not as exhausting as chemotherapy would be. {AND I happen to work at my OBGYN. What a blessing is that?? Super convenient!}So, IF something changes, the docs can catch it super early. Eventually, I have no doubt that I'll have prophylactic mastectomies and a hysterectomy. As to WHEN to do that, Scott and I are still thinking and praying. Obviously, we haven't had children yet, so that's a major factor.

I am also making lifestyle changes, as has been hinted at on Facebook. Being overweight and inactive increases risk for cancer, and plenty of other modern diseases. {And heart diseases and diabetes "run in the family" too...that could do me in before a cancer does!!} I'm exploring a Paleo/primal lifestyle to make dietary changes. Avoiding all processed foods, cutting WAY back on gluten (because it has been shown to be inflammatory, even without a celiac disease) and carbohydrates in general, cutting sugar, and focusing on high-quality proteins and plenty of veggies and some fruit. I'm trying to at least go walking everyday, and do short strength workouts.

Even if I cannot change my genes, I can help my body do what it can in reacting to my genetic makeup. And a healthier lifestyle never hurt anyone, right??

So, back to today: National Previvor Day. Some of y'all who know me IRL may be shocked or whatever by this post. I haven't told many people at all, even though I've known my BRACA results since July. I'm sorry if you ARE finding out this way...I just honestly have been dealing with how to tell people. So, I figured this was as good a day as any! {I live a "social media life", but somehow, this wasn't something that one tweets out immediately. And I don't blog very often anymore, but writing about this helps, I think.}

What I want to do on this Previvor Day, is to encourage others (women AND men) to:

  • Know your family histories! Ask about even your father's side...I met a girl in her 30's who's BRACA mutation came form her dad's side of the family! If you discover more than one family member who's had a female cancer, ask your doc about genetic testing!
  • Do your self-checks...you hear about it all the time, so just do it.
  • Do your yearly check ups at the doctor. It's not fun or enjoyable, I know, but it could very well save your life. Mom's breast cancer was caught by mammogram at a really early stage. She still had to do chemo, but not as much or as long, because it was early staged.
  • Almost all of us could make positive changes for a healthier lifestyle. So take and honest look at yours...cut out processed foods, cut out fried foods or start taking a walk everyday. {This is a daily struggle to overcome 32 years of poor eating habits and a loathing for exercise, so I'm mostly talking to myself here folks}
Psalm 139:13-16
For You formed my inward parts; You knitted me together in my mother's womb.
I will praise You, for I am fearfully and wonderfully made.
Wonderful are Your works; my soul knows it very well. 
My frame was not hidden from You, when I was being made in secret, intricately woven in the depths of the earth.
Your eyes saw my unformed substance; in your book were written, every one of them, the days that were formed for me, when as yet there was none of them. 



Questions? Just ask me!

Tuesday, April 28, 2009

Long Over-Due Easter Weekend Pics

I didn't post anything last week, and I really don't have much to post about this week either....hmmm...sorry I'm such a bad blogger!

Here's a few pics from Easter weekend, which was also Scott's birthday. Poor Scott...his birthday kinda got lost in the shuffle of all the family things we had to attend that weekend!

Scottie's Birthday cake at mom's house on Easter Sunday

Me and sister bein' sassy on Easter. Yes, I wore black on Easter. Don't judge me.

Us with Lauren Saturday night at Mamaw's

Chris found this kitten under his house in Auburn, so he and Natalie adopted it. It is SO cute! I love it!

The girls Easter Saturday night!

Lauren meeting the kitty...I think Lauren liked the kitty, but the kitty was pretty scared of her!

Monday, December 29, 2008

Christmas a Deux

Well the weekend was busy, to say the least!
We had Christmas Eve service at church, where all things technical went hay-wire! I was running the light board and JC and Lindsay were running sound and Mediashout, respectivly. Fifteen minutes before the service was supposed to start, JC was messing around at MY light board and got the levels all locked up! In the end, we had to call Paul Sutton, shut down the board and restart it...we were trying to get that taken care of before Kevin started the service, but alas, he started on time and so we were in the dark through the first song. Awkward. But it was a fine, old-school SMI service, complete with all Vignuelles participating. Mick and Rick sang, Tiffany and her Children of the World performed and Pastor Dick gave the message and candle-light part. Vintage 1985-SMI! I felt like a little kid again when Pastor Dick got up to the pulpit.

After the service. we went to Dad's to exchange presents with him. Dad made some browines, and bless his heart, over cooked them quite a bit. Everyone made it except Noel and Ash, but Dad was going to spend Christmas morning with them and the baby. After Dad's we still had to eat dinner, so Cub and Abby came over and helped Scott wrap presents while I made dinner and worked on pies.
Christmas morning, we slept in, made sausage balls and cinnamon rolls for breakfast and opened out gifts from each other. "Our gift" was an ottoman coffee table that I had been wanting! It's dark brown leather, so it looks great with our lighter brown sofa, and has two cubes that store inside. Slowly but surely I'm replacing the hand-me-down furniture in the living room! This will also give us lots of extra seating!
Scott made his pies, he made an apple pie and saved me crust to make a chocolate pie, which will probably be a future Left-Over Wednesdays posting! We ran to Mimi's house just in time to open presents with them, the Brannons and Noel and Ashley. The baby, of course was the center of attention! And, random side note, me, Abby and Mom all matched, unintenionally, in shades of grey, purple and black. Oddly enough, that happens with me and Abby quite a bit. Not so much with Mom, as she wears too much pink. We then made our way to the Leveilles for dinner and presents with all of them. Carrie, Chris and James had been in town for a while, and Heather and her crew were coming over from Trussville. With 5 children ranging from 4 to 11, it's usually mass chaos for present time! The pies we made were for dessert at the Leveilles, and I have to say, MY chocolate pie was liked better than Scott's boring old apple pie! :)

Saturday I started feeling sick. Scott was getting over a viral cold, so I'm sure that's what I caught. The rest of the weekend was spent on the sofa or in bed. Boo. I'm still not completely better. A shot in the hip helped yesterday, but it's one of those things that has to run it's course!

We leave tomorrow morning at 6AM for Boone, NC, with 23 college students and young adults for our winter retreat! We are so excited, but I sure hope I feel better than I do now! I'll be back next week with an update from retreat!

Happy New Year All!

Wednesday, December 24, 2008

Christmas...Round One

So we started Christmas celebrations early...we had Christmas with Mom on Saturday and Christmas with Mawmaw on Sunday. This was only the beginning... Mom decided that she would not cook and had Cajun food catered in for Christmas dinner. And spinach ravioli for me, since I don't eat seafood. Random, I know. Here's a few pics from the evening! Baby Lauren was the center of attention for most of the time!

All the sibs...we coordinated nicely. The boys wore green and me and sister had on red! ;)
Abby just thinks she's the favorite aunt...
The other "sister", Rach, came too! :) Reechel! (for those that don't know, Ree + Rachel = Reechel we are alot alike)

Sunday was at Mawmaw's house with Dad's side of the family. We always have fun with our cousins Chris and Katie (and Chris' GF Natalie). Scott and Katie have a tissue-paper-throwing-war that has been ongoing for years now.

All the grandkids plus Lauren, the first great-grandchild
Lauren was more interested in eating things. At least she was eating her new doll rather than tissue paper!

Isn't she CUTE???
Mawmaw with her first great-grandchild!
We played Dirty Santa too and I ended up with a large stuffed Santa and Scott ended up with The Dark Knight DVD. We were pretty excited about the DVD since we have not seen that yet! I, however, have no use for another Christmas decoration, so my dad trade with me later for the tin of Double-Mint gum and $15 cash that he got.
That was round one...stay tuned for Rounds Two and Three!